Health data infrastructure keeps failing for the same reason: it builds services when it should build protocols. Two companion blog posts make the case from opposite sides of the Atlantic.
The Catalogue and the Crisis
Why the UK’s £600M Health Data Research Service needs cataloguing rules, not another library building. From Panizzi’s 91 rules to the Bermuda Principles, the case for protocols over platforms.
The Current Wars of Biomedical Data
Five NIH-funded disease programmes, five incompatible data platforms. How the US biomedical research ecosystem is replaying Edison vs Westinghouse, and what the Bermuda Principles teach us about the way out.
More to come
Companion papers covering the full technical case, a visual executive summary, the political and rights-based vision, an enforceable health data rights framework, a protocol specification, and an implementation roadmap will be published here in the coming weeks.
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